Skip navigation.

Through Mine Own Eyes

details in a tiny world

Posts tagged with "aletta i l mes"

From the Lab Rat's Desk, November 1, 2007

, , , ...

Still have the same bloody headache so the last few weeks have not been terribly productive. Nonetheless there has been movement. In another week I can pick up my passport after which I can get the local Identification (which required a passport or local birth certificate, hence the passport first. Yesterday I finally got my replacement bus pass, so that means I can get about, and it won';t cost me every time. Unfortunately my knee isn't getting better as I would like and it caused me grief, in time it might get better. The police are closing my file, or rather it is now inactive as nothing new has happened or come up (nothing found, and the only likely suspect cannot be called in on what they have currently), sigh. I still find myself not quite as resolute of step and am still looking over my shoulder far too much. I still have a lot of paperwork to do, much of it futile. The victim's assistance will only help with medical and counselling costs but not with replacing stolen goods, maybe with added transportations costs (stolen bus pass), but for that alone it is a lot of paperwork. That 20 dollar cheque that social services had agreed to add in for those emergency funds, never materialised, something they said to get me out of the building. I expected it, they take joy in the misery of others (shadenfreude). I'll be back to my jolly self if I can get a break from this headache. Certainly I know who values me, friends and family, and devalues me, the government and agencies designed to help out those in need (throwing the helpless on the compost heap). I've passed through the worst of my nightmare, but if I have an ounce of spare energy here and there it will be spent screaming at the people in charge over their utter failure to help the needy, and that includes the media, who failed to do any kind of follow up when the people a block away from me suddenly found themselves homeless, quite a few now wander all day long with their few possessions, shelter to shelter. It sickens me to see the sanctimonious lot fawning over the 2010 Olympics and the surplus of tax monies in this province.

trish trash no treasure here
no dignity when money runs out


More.... Textile Blog(More) - Word Pressed

Locations of visitors to this page
Arts Blog Top Sites Blog Flux MapStats: Stats and Counter for Through Mine Own Eyes Blog Flux LinkLog: Outgoing Link Logging and Click Tracking for Through Mine Own Eyes Google PageRank Checker Tool

Rate Me on Eatonweb Portal - Blog Directory
bad enh so so good excellent

Rate Me on Blog Hop!
the best pretty good okay pretty bad the worst
Sphere It



from the lab rat's desk september 15, 2007

, , , ...

It is getting chilly at night and the days are less and less sunny, and I dread the cold winter ahead. There is more I dread and it bother me to even say of write of it, denial offers comfort, especially when there is just and overwhelming amount of the negative in day to day life.

Where I live is no palace, definitely not. I am at the bottom of my life without much chance of improving my lot. Whereas some years ago I had a full time job and my own business, and was teaching master classes a couple of times a week, now I am a breath away from homeless. My crime was that I had the unmitigated gall to lose sufficient numbers of brain cells to an orphan disease, for which there is neither cure or treatment, nor any big and powerful organization to fight for research and quality of life. I didn't get this as a result of neglecting my health, taking part in risky behaviours, nor abusing substances. It was just my rotten luck.

Locations of visitors to this page
Arts Blog Top Sites Blog Flux MapStats: Stats and Counter for Through Mine Own Eyes Blog Flux LinkLog: Outgoing Link Logging and Click Tracking for Through Mine Own Eyes Google PageRank Checker Tool

Rate Me on Eatonweb Portal - Blog Directory
bad enh so so good excellent

Rate Me on Blog Hop!
the best pretty good okay pretty bad the worst
Sphere It



Read more...

On Wings

, , , ...

angelwings
Souls of heaven by birth
Given time carried on wings
Of angels, sparrows, ravens

Live and prove our worth
Whatever time brings
On wings of angels, sparrows, ravens

Fruit of labours, watered by tears
Of those left behind.
Return to heaven on wings of angels, sparrows, ravens.

Arts Blog Top Sites Blog Flux MapStats: Stats and Counter for Through Mine Own Eyes Blog Flux LinkLog: Outgoing Link Logging and Click Tracking for Through Mine Own Eyes Google PageRank Checker Tool

Rate Me on Eatonweb Portal - Blog Directory
bad enh so so good excellent

Rate Me on Blog Hop!
the best pretty good okay pretty bad the worst
Sphere It



Children's Christmas Story Illustrated

, , , ...

This was one I did for my kids when they were toddlers, that one was in markers and board, this would be the hi-tech version for the grandkids:

firstchristmas

Arts Blog Top Sites Blog Flux MapStats: Stats and Counter for Through Mine Own Eyes Blog Flux LinkLog: Outgoing Link Logging and Click Tracking for Through Mine Own Eyes Google PageRank Checker Tool

Rate Me on Eatonweb Portal - Blog Directory
bad enh so so good excellent

Rate Me on Blog Hop!
the best pretty good okay pretty bad the worst
Sphere It



From the Lab Rat's Desk

, , , ...

It's all been about coping this week. I've run out of pain pills (the time release version) and am patching together over the counter and my break through pain medication trying to last until the doctor's appointment next Friday, hopefully after all my letter writing and support letters from my X and my daughter, and not least, the presence of my X at the appointment, she will this time, give me the whole of my needed pain fighting regimen. I am fortunate that I do not suffer with withdrawal symptoms. that part of my brain is (in this case thankfully) damaged beyond usefulness. Not so good is that fact that there is nothing wrong with my ability to perceive pain and discomfort. There was a time when I did not feel much pain at all, the down side of that time being that I also could feel nothing else, just numbness and some tingling, my feet could not sense touching the floor or feel me smashing my hand into a wall or cutting through my flesh. I would all to often be surprised that the trail of blood on the carpet turned out to be my own and would have to ask help in finding the source.

Applying logic to the problem I supposed that my nerves might be dying off with a lack of bloodflow, resulting from low blood volume, thick blood and low blood pressure, a combination not at all uncommon with someone having Shy-Drager (or the new label MSA-A). I found some research notes on medication developed for just that triad of symptoms for sickle cell anemia and also for diabetes peripheral neuropathy, and after some correspondence with the author of this research found a doctor here willing to prescribe the medication off-label to me. It took six months but I got my feeling back and my coordination improved also (I suspect my brain was not having such good bloodflow either and benefited in several other ways not as noticeable as my blue/purple feet). This was when the pain became unbearable to the point of needing pain medication. Imagine being drummed off a support group for having this disease and having so much pain I needed medication, they (the self appointed experts) told me I could not have the disease since there was no pain associated with it. Of course there wasn't, their bloodflow (or rather the lack thereof) had already killed off their peripheral nerves to where they could not feel the pain, which does not mean that a painful condition did not exist! Even physicians cannot get past the literature which says that MSA is not usually a painful disease. They know about the poor blood flow and acknowledge that starved nerves DIE, yet do not supply medications which restore much of the needed bloodflow. Just what is wrong with this picture. I'd rather have to take pain medications than live a life without feeling pain which serves as a warning, and the poor blood flow to the brain may be speeding up the devastation in there. There is more and more literature piling up that the brain can be repaired and that intellectual and creative activities slow down Alzheimer, with some help get bloodflow working optimally (recent tests with Lipitor are showing success, as is aspirin and similar anti-inflammatory), yet doctors do not give those medications to persons with MSA routinely, expecting us to march quietly to our demise. I just can't accept that. Now I have to convince her of all this. I will be so grateful once my own doctor is allowed to return to work. It has been nearly 6 months now.

photos aletta mes 2006

It has been a rough week pain wise. I've been trying very hard to keep busy, probably overdoing it quite a bit but I cannot sleep or rest when I am in pain and it helps to do something. so I sewed new drapery for my living room. I found some fabric at the local discount fabric store. Ends of dye runs which look very artistic (I thought the pattern was intentional). The fabric is for outerwear meaning it holds back the wind very well (and of course very cheap at 1 dollar a meter). I lined it in part with blackout material made out of the darkest of the lot. Since. I sleep with my patio door open to allow my cats their access to the cat box which I keep on the balcony. The curtains are green with butter yellow and blue streaks running through. I sewed the lot in one night. I also redid the kitchen counter tops, and since my landlord never gets round to puttying and painting my bathroom ceiling, I spent and afternoon, precariously covering the ceiling with vinyl paper (it is my war against mold, and I will win it). My more tranquil moments were when gardening on my balcony. Lots of lavender and herbs, and as much lobelia.

photos aletta mes 2006

If I manage to pull it together tomorrow I just would like to at notion I will stay home and perhaps sculpt (bought some more clay) or work on my walking stick with my new rotary tool. I might even manage a to write a new story. For those of you following my attempts to foil the reaper and confound the standard medical notions about neuro-degeneration, that should catch everyone up. I did take, what I think are, some very nice photos of the gardens in my neighbourhood and some of my grandkids, anyone wishing to take a peek they are at www.flickr.com/photos/aletteke

photos aletta mes 2006

My apologies for running on and on, having got that out I might be more coherent and interesting tomorrow. Much like throwing everything out into a big chaotic pile and then sorting it all out.



Arts Blog Top Sites Blog Flux MapStats: Stats and Counter for Through Mine Own Eyes Blog Flux LinkLog: Outgoing Link Logging and Click Tracking for Through Mine Own Eyes Google PageRank Checker Tool

Rate Me on Eatonweb Portal - Blog Directory
bad enh so so good excellent

Rate Me on Blog Hop!
the best pretty good okay pretty bad the worst help?



December 2009
S M T W T F S
November 2009January 2010
1 2 3 4 5
6 7 8 9 10 11 12
13 14 15 16 17 18 19
20 21 22 23 24 25 26
27 28 29 30 31