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Through Mine Own Eyes

details in a tiny world

Posts tagged with "cripled"

From the Lab Rat's Desk, November 1, 2007

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Still have the same bloody headache so the last few weeks have not been terribly productive. Nonetheless there has been movement. In another week I can pick up my passport after which I can get the local Identification (which required a passport or local birth certificate, hence the passport first. Yesterday I finally got my replacement bus pass, so that means I can get about, and it won';t cost me every time. Unfortunately my knee isn't getting better as I would like and it caused me grief, in time it might get better. The police are closing my file, or rather it is now inactive as nothing new has happened or come up (nothing found, and the only likely suspect cannot be called in on what they have currently), sigh. I still find myself not quite as resolute of step and am still looking over my shoulder far too much. I still have a lot of paperwork to do, much of it futile. The victim's assistance will only help with medical and counselling costs but not with replacing stolen goods, maybe with added transportations costs (stolen bus pass), but for that alone it is a lot of paperwork. That 20 dollar cheque that social services had agreed to add in for those emergency funds, never materialised, something they said to get me out of the building. I expected it, they take joy in the misery of others (shadenfreude). I'll be back to my jolly self if I can get a break from this headache. Certainly I know who values me, friends and family, and devalues me, the government and agencies designed to help out those in need (throwing the helpless on the compost heap). I've passed through the worst of my nightmare, but if I have an ounce of spare energy here and there it will be spent screaming at the people in charge over their utter failure to help the needy, and that includes the media, who failed to do any kind of follow up when the people a block away from me suddenly found themselves homeless, quite a few now wander all day long with their few possessions, shelter to shelter. It sickens me to see the sanctimonious lot fawning over the 2010 Olympics and the surplus of tax monies in this province.

trish trash no treasure here
no dignity when money runs out


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Canada's poor finally to find a voice in the world

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Articles on goings on in Geneva this week, where the world will learn of Canada's poor human right record. more here: http://poorbashing.blogdrive.com/

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The Path of Pain to an Alternate World

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aletta mes 2006 Ronnie sat on the side of the bed staring vacuously into space, but not for long., It was not healthy to let her mind wander, not any more, and it was inconceivable that it would ever be again. she would have to wait until little sister had her shower. Time was not passing very quickly at all, no matter how greatly she needed it to. Ronnie's mouth just inside the lip was swollen and sore from all the biting she had been doing. Pain causing herself to remain distracted from the place, that very dark place which her mind kept wandering back to. She rocked back and forth trying desperately to think and feel anything but the touch of his skin, the smell of him, even the taste of him. Ronnie had been keeping a pearl hat pin by her bed, the pain of sinking it into her thigh would stop the thought and sensations streaming into her. Life would not be entirely her own until she could control it. She was angry and hurt but not defeated. In some twisted way it may even have helped that her mother had been less than kind, less than helpful. Her rapist was mother's friend and her response "you just don't want me to have friends" raised her anger to such levels the sadness burned off, instantly and did not come back. The shower stopped running and she put on her dressing gown and slid quickly into the shower, and as she had for the preceding week scrubbed and scrubbed until her skin was raw and all she could smell was the scent of her soap, the one given her as a present from mom because she had admired the illustration on the wrapper of the bar of "Maya". It suited her, because the scent too was aggressive, angry, passionate. Sleep was fitful, interrupted by sensations of crawling skin and the awful feeling there was someone hiding in the shadows of her room. Ronnie tried praying but it was dissatisfying, she felt disassociated from a god who did not save her. What kind of deity gives a rapist free reign on a girl, and innocent child who does not even have the kindness of a mother to come home to. In the early morning Ronnie was up, stretching, checking out her posture and alignment in the mirror. Slowly, over a few more weeks the girl in the mirror became Ronnie and Ronnie herself disappeared. The girl looking back at her was a dancer, a graceful slip of girl with no personality of her own. A beautiful creature with complete control over her body, able to keep away pain in favour of beauty. She was alone with her favourite music every moment she could. Her teddy bear was shelved and in that sacred place next to her bed her ballet slippers now were there at night to watch over her. Ronnie had not liked her life a very long time now, six months for a child is a very long time. Her father sprung it on the family that he had a new job that would take him to the other side of the world and all things familiar, despite all protestations were gone. No more toys, no more school chums, no more relatives or pets. Her mother, always unstable and largely unavailable had become even more so in the months after moving overseas, and her little sister, well she was only three, daddy was either working or dealing with mother and sister. Ronnie was "older" and could manage to spend some time alone. The only escape left in her entire life was ballet class. concentration and pain to control her body so she would become the perfect instrument for a choreographer to paint with made the escape to the other realm easy. Simply, when the music played and the grippy rosin had been evened out by crushing it into fine powder underfoot her spirit, the indefinable soul driven person inside took over. For as long as the music and the rosin held out she could dance and live in another world where none of this had ever happened, nor ever could. Ronnie had several months to her immediate goal, an audition. The offer made to her by a choreographer with whom she had taken some master classes was going to become a reality. Every fibre in her body was working only to that goal and nothing else. If she was not totally dedicated before, the attack on her innocent body had made it a certainty, it would happen. Parents were no obstacle, mother was self involved and father was involved with mother's needs and would happily concede whatever it took to make life as easy as possible. Her school work remained immaculate and done on time, she now spoke English as well as anyone else. Those clever people at the board of education had made it so easy to succeed in this grade because she had done it all before, in dutch, yes, but it had not seriously warranted pulling her back a grade as if she was an idiot. It did seem as if the world was conspiring against her. It could work for her, Ronnie had the determination not to let the bastards win by breaking her spirit, not the school board, not immigration, not her mother, and not her rapist, most definitely not him. She knew how hard it would be. Her hips, her Flemish hips, were too wide. Though a few months ago she was the right height by now she was a couple of inches over the ideal. Her turnout was barely sufficient and her extension would need a lot of improvement. What her teacher did not know, was that all the discouraging words were not working, Ronnie took all those words and used them to build herself a master plan, it was critique of the most constructive kind. What was unthinkable was returning to being just Ronnie, a child., that had forever been taken away from her. If her plans for a life in the ballet would fall through she would have to face all the demons at once. Demons such as the impossible role of the virgin bride which this little catholic child would never be. Demons such as the other men who would want to touch her, and were perfectly wonderful people, but she could not bear their touch and would not want them feeling hurt by her revulsion. Perhaps the greatest demon was her anger, which had been building up for months and could take on a life of it's own, she could not let the demons out. So no matter how her toes hurt and bled it was nothing compared to the pain of having to be "normal", when that ship had sailed and sunk in the harbour, but not before being lit up in flames lapping at every timber and sail. For as long as she could keep dancing, she could be civil to her fellow persons, laugh at their jokes and ignore comments such as "she's stuck up" and "I think her bun might be wound a little too tight". If she could keep on dancing she could be a good daughter and sister. If she kept on dancing she would be tired enough to sleep a few hours from the sheer exhaustion. Ronnie knew eventually her body, which was clearly wrong for the ballet, wide hips and hyperextended limbs, but it would buy her time. Each passing hour and day would leave the horror of that day, that sweltering summer day pinned under the fat sweaty, hairy heaving bastard far behind. She could envision herself melting into the ground, reassembling as a slight figure in a gauzy skirt, executing perfect fouèttés and seemingly suspended at the top of every jèté so the audience would gasp. Eventually a time would come, a time after the audition, many auditions, many performances, many, many more classes when the sweaty bastard was not even an image anymore, he lived on only in the occasional inexplicable anxiety triggered by a smell or taste or aversion to certain people. Unfortunately the time would come when those perfect fouèttés and jètés were excruciating and another plan needed to be put into place or the demons would do all they could to destroy her. for now Ronnie was dancing, and it was good.

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Sara and Bill

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They were both AIDS positive. I had seen her only once before, he was a regular at the small free lunch cafe where I did my counselling sessions as they had lunch. Sara and Bill (not their real names) chatted closely the previous day, I marvelled how despite their obvious advanced illness and their desperate situations they flirted coyly with the same innocence as anyone else.

I'd not be able to say how old they were, after years of living homeless and addicted twenty five often looked like forty or fifty, most of them were barely past childhood when discarded by society and family. In each other they found interest and affection, the place was of no consequence and their troubles fell off. Instinctively we all gave them space, no one tried striking up a conversation or asking for anything. Bill cleared the table and brought Sara another coffee.

Afterwards each went their own way. There is a territoriality and work ethic in this population, begging or sex trade it is still work and attending clinics, hoop jumping for services and counselling, standing in line for methadone. It is foolish to think this does not require some self discipline. These were not things that could be done together.

They were both back. Sara had come first, she glanced around for him. She bit her lower lip, deep in thought, hoping, not eating. Finally, Bill turned up. His face flushed when he saw her. She stood up to wait in line beside him then they took a table outside. I had just sat outside to have a smoke and talk with another client. Bill asked me for my lighter. The triumphantly he took out the stump of a candle (origins unimportant). With great ceremony he arranged the table, and put away the trays. He placed the lit candle-stump on the table and they sat, holding hands, and eating lunch. For just a few moments, they were human, their lives mattered to each other.

for more in this vein: http:aletta.org/poorindex.shtml



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Bartering with the Reaper - Part II

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images aletta mes 2006

The news of my impending demise was a greater tragedy to some than others. There was the quiet shock where friends and family were just very quiet and careful not to mention the subject, Lest perhaps the mentioning of it might even bring on death itself. Whenever I brought it up there was wincing and the predictable "Please don't talk like that." They had no idea, nor perhaps did they care much, that talking about it was just exactly what I needed to do.

As time passed I learned never to speak the word death as it applied to me in the presence of some members of the family. To the ones I did occasionally mention it it was quickly dismissed with "Oh, if we know you it is a long while off."

Now while all this confidence in my ability to keep the reaper at bay is a compliment, I suppose, of sorts. It diminishes the impact it is having on me on an almost daily basis. How can you not be aware once you've been told you are going to die within the foreseeable future, possibly as soon as today, much like trying to ignore an enormous blister on you heel. It might not be on your mind most of the day, but when it is time to put on your shoes or soak your feet, just try ignoring it.

In psychology we are taught to allow the client to talk about the most awful truths in their lives, because it diminishes the hold that awful truth has on the person. Having counselled the terminally ill myself I know the positive effects it has to be able to talk about the fear of death and more particularly those last moments.

One relative actually stopped visiting me and admitted it was just too depressing. At least she was honest. Not a bit of help, but honest. I imagine she is not the only one. There has been a steep decline in friends and family spending time with me. then too I have my fans, the people in my life who seem to think I can beat this. I find it puts a lot of pressure to bear on living longer. I might want to live longer, but I really would like to do it for other reasons than living up to their expectations. The most prominent among these fans are my kids, now how can I stop trying to beat the reaper when my kids have utter faith in me that I can?

I don't often think how I feel about all this, I am usually to busy trying to tap dance around the sensibilities of others. Death is offensive to most people, if you are mortal then it follows they are too. No-one wants to be mortal, everyone seems in a race to live longer and better through whatever means, so seeing someone quite young about to die raises the spectre of failure. This has become a society of losers and winners. somehow the ideal person is wealthy looks very young, is immensely active and quite possibly will not die until their hundredth or later birthday has passed.

The fear of death is also a profitable enterprise. Large amounts of money are thrown at research to keep death and ageing away. Much less money is thrown at less than well people struggling with their last days. Most probably this is the reason that services for the progressive/terminal diseases make certain demands. To be eligible for most you need it on paper that you will not live more than 6 months. I have to wonder, what if you are taking part in their program and live longer, what then? Other services (therapy) demand that you show progress, otherwise the therapy is discontinued, a slowing of progression is not considered progress.

That is a lot of pressure on the patient, to know you will lose a service that is helping you because you do not fit the rigid criteria. Should you live longer, or fare better than the doctors had expected, doubt is thrown (once again) on the diagnosis, which is either changed, or more testing is warranted. Not fitting in the expected prognosis is treated as a failure. As a patient you feel lousy for failing to match up to the standards of the disease. Odd how not one thinks it is marvellous that you've done better, nor wat to know how you did it so something might be learned from it that might even help someone else.

I try to be brave, I try not to bring up the subject much, but it does eat at me, some days more than others. If I have a bad patch, when my chest feels soggy with edema and my eyes are swollen, when odd pains strike, or when I lose consciousness, or when suddenly I cannot hold things, or control my bodily functions, I feel dread.

So far I've got past all my bad patches and I have progressed very much more slowly than projected, but as time passes, I am ever more tired. Tired of the walking on eggshells over death, tired of fighting to hold on to my health as best I can, tired of putting others at ease, tired of seeing obituaries of people on support groups whom I've come to know of know of, tired of wondering at what point I will become so burdensome as to require warehousing.

I have those days when I want to put aside all thought of it and do as if, as if it is not there. But it is there it cannot be ignored. I have the other kind of day when I feel like giving it up, it is oh, so much work to hang in there and fight.



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