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My Family Moves to India

An American family moves to Chennai

Posts tagged with "breast cancer"

Pink Ribbon Day



Today I celebrate my one-year breast cancer survivorship anniversary. One year ago today I finished my radiation treatment and walked out of that cold, dreary hospital and into life again.

I have to say that it has taken a full year to feel recovered. It took around 8 months for the pain to completely disappear, and a few more months after that for the fatigue to die down. But I feel good most days and you can't really tell that I had breast cancer, except for two tiny blue tattoos and another scar.

For my celebration today I chose to get a massage, lay by the pool, eat some Thai food, and catch up on e-mail. Life has been hectic lately with several houseguests and the holidays, so it was nice to take the day off. My sister A joined me which made it even more wonderful.

Here's to many more such celebrations! :smile:

Bits'n'Peices

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Today we had our first, and only, primary program practice. The program is next week. Generally you work the entire year on it, but hey, this is India; two week's notice ought to be enough, right? Thankfully, the two orphanages that church members run must teach hymns incessantly, because the older children (who are mainly from these orphanages) know most of the songs. So I threw a program together, directly from the outline, and off we went. My husband acted as "primary bouncer", asking gawping onlookers to leave us in peace (everything in India must be done accompanied by a crowd of uneccessary onlookers) and keeping the two wildest boys controlled. Somewhat. Of course one of those boys is our son. Next week, he is soley in charge of those two boys. Poor S.

Speaking of everything in India being an (unecessary) group effort, I wish that I had video of my guards and I planting a couple of pot plants last night. I enjoy gardening very much and so was hoping that I could convince them to let me do it myself, but apparently Madame with her hands dirty is just too much. Plus two of them are former farmers/gardeners, so of course they had a non-stop argument (well it sounds like they are arguing, but I have discovered that one of the features of Tamil is that you must talk loudly over each other and repeat yourself at least six times, so it really wasn't an argument. Just normal communication.) One insisted that the dirt that I bought (remember we live on the beach, so I wanted something more nourishing than sand) was too rich and needed mixing with some sand. The other didn't like the way that they were putting the plants in the pot.

I couldn't help it. At one point I started imitating them, flapping my hands around and saying "ile! ile!" ("No! No!") repeatedly. They took the ribbing well; we had a good laugh. Seriously, when they get going, it resembles a three ring turkey circus.

So at long last the pots were finished, and despite their efforts, I DID get my hands dirty. ha ha. But I noticed that no one bothered to water the poor things, as I instructed. Ah well. Guess that's something that I can do. :smile:

J also bought a little plant, and we bought a small rose bush for her friend R. Plants are tremendously cheap here. Amazing. I'm very excited to see how they do.

L....well, books could be written about L. He demonstrated to me last night how he uses he mini-tramp to catapault between the marble benches that line our driveway. Hmmm....no wonder his shins are covered with bruises! Last week he got into major trouble because he started the van and tried to drive off. Major, major trouble. This was after the experimenting with fire incident. sigh.

Meanwhile, he continues to do moderately well at school. He made a hilarious picture the other day, which I will try to post sometime this week.

J is happy, although she didn't want to go to our first ever Indian wedding this last week. My driver's brother got married. It was sheer chaos. 800 people were there. Only 200 would fit in the wedding hall, so they had the ceremony 4 times over, and fed folks in shifts. The ceremony itself was unintelligible, but did involve yellow string and garlands. It was a Christian Tamil marriage, so the Bible was also involved. Oh, and someone sang a Christmas hymn at the end. We sat and smiled and dripped sweat and had our pictures taken like we were celebrities. Then we congratulated the bride and groom (more pictures) and went down to eat. My considerate driver had ordered pizza and pop especially for us - which of course my picky children wouldn't touch, as it was spicy pizza - but we guzzled down the biryanhi with the best of them. (Except J, who wouldn't touch even the bananas. But that's J.) We brought our own water and stuck with the cooked foods, and amazingly, we were NOT SICK the next day! (Except for L, who of course ignored his mother's instructions not to drink the local water. Being L, all he got was a short stomachache.)

If it hadn't been a two-hour drive through traffic and extremely hot, we might have taken some pictures. But as it was, photography was too much effort.

E was our cultural guide during the event. She wore a beautiful blue sari and looked wonderful, although I heard later that the maids (who helped her dress) thought it too plain and wanted to laon her one of their silk ones.

E finished volleyball this week, on a disappointed note, as she doesn't qualify to play in the international tournaments because she is over 18. So her coach quit playing her in the local games too. She has decided not to do soccer, and is going to concentrate on her SAT studying and homework. The big news is that she DID get her tourist visa to return home to GA and see her family over Christmas. She is one happy girl.

S works. Work, work, work, work, work...........what can I say?

And I run around and have fun, although I am a bit stressed by the house these days. Two major things have broken in the last week (leaky window and an electrical breaker). Plus, we are still not unpacked! I can't believe how long it takes to get that done when you face constant home maintenance issues! Our food shipment came last week, which added 13 boxes to the unpacking, and our emergency kit got left on the roof (blog about "Tsunami Warning" coming up) and rained on, so it had to be unpacked, dried, and re-packed. (One of those times that you really appreciate having maids, even if they can't do the dishes properly. :smile: ) I just finished re-packing the emergency kit tonight. Three steps forward, two steps backward. Ah well.

Also I have had a relief driver, and let me tell you, only another expatriate woman in India would understand the stress and hassle that involves. If Arul, my regular guy, had been here, L NEVER would have had access to the car keys!!

But Arul comes back tomorrow, and Sir has declared that He Shall Have a Raise. (Sir is tired of me having the come-aparts about the relief drivers. One of them even tried the old commission trick on me, driving me to a store instead to the school to pick L up.) Lucky Arul. That ought to make up for all of the repairs that are stacked up for him to take care of.

The wonderful news is that two new American families have moved in, and I am so enjoying their company. A just got here with her 4 kids, and P has been here a few weeks - P works with me in primary, and thanks to here, the children have a shot at singing decently! :smile: I'm so excited to have them here. :smile:

I've also started to treat myself to a weekly massage. I'm having back pain - I need a chiropractic adjustment badly - but there are no chiropractors here. So I figure the next best thing is a massage. It's amazing how good it makes me feel, mentally as well as physically. After 33 sessions of baring my breast to a handsome radiology tech, lying perfectly still while they poured nuclear poison into it, it's sooooooo nice to have something done that isn't going to bring me more pain. Cancer really does change your perspective. It's erased a lot of my negative body image feelings, as well as some of my modesty. I'm just happy to be alive, and not in constand pain. :smile:

The curse continues.....

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Going “home” has been a very bitter experience. I had mixed feelings about returning because it’s been a mere three months since we moved, plus I felt that I really wanted to have some basics settled with the house in Kanathur before we left, which did not happen. But, I also wanted the children to see their grandparents, aunts, uncles, cousins, etc.; plus, I myself could use a break from the constant wear and tear of struggle to get anything done in India. America, my husband assured me, was a lot “easier”.

Not to mention the cancer follow-up medical appointments that I needed to have done. We had opted to trust our own medical system more than the Indian system, primarily because of the equipment available - not the competency of the doctors. I have been very pleased so far with the expertise and communicative ability of the Indian doctors that we've consulted at the ACE Clinic in Chennai.

Unfortunately, it hasn’t turned out to be easier, and it‘s certainly not been a holiday. First, there was the two-day nightmare of trying to get out of Chicago on United Airlines (see “We’re never uniting with United again”); and today, when I went to get my baseline mammogram - the number one reason for returning, as it is time to establish how much scar tissue is left after my partial mastectomy and radiation for breast cancer - they turned me away.

Yes, I had an appointment, set up months before on a late-night phone call to the US. Yes, it’s an internationally renown cancer center - indeed they advertise on their web site how easy it is to receive treatment there as an international patient. And yes, we planned the entire trip around this date, carefully cushioning it with two days of leeway beforehand, so we could not possibly miss the appointment.

However, they neglected to tell me that I needed my previous mammogram films to complete this procedure. They are still in India, safely tucked away in the top of one of my closets, and no digital copies are available. Nor did my pleas that I only wanted a mammogram done on a US machine (theoretically more modern than the ones that I might potentially come into contact with in India), not the consultation with the doctor (which I didn’t care about, since there are many western-trained, highly-qualified doctors available in India), move them. They flat out refused to do anything.

So I was left, sobbing in frustration :cry: , in the lobby, with vague promises that they would consult with the radiologist “when he gets in”. Of course they “didn’t know” when he would be in and “had no way of contacting him”. Yeah right.

Shawn called the manager and she promised to call me and "work me in", but she never did. When I called her, I could only get her voicemail. So we have to wait until Monday to tackle the problem. Since we're supposed to leave on Thursday to go to the first part of my family's reunion in Williamsburg, we're on a really tight schedule. I'm not too optimistic about this coming together; I think I'm going to have to have to stay longer in the US to get it done. Or is there such a thing as a drive-by mammogram? :left:

The icing on the cake is that I can’t get the internet to work on my laptop here in my hotel.

I could have done all of this in India, including the part where people are refusing to do their jobs and outright lying to me, and skipped the jet lag. And it would have cost tons less money. :mad:

the Christmas in May

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Yes, the food shipment came! :D

This made all of the Mitchell's happy. In fact everyone is happy about the food now : the staff have their tea, and we have our precious American foods.

The staff celebrated by making a pot of tea, which Arul pronounced "good".

We celebrated by having Spiderman Kraft Macaroni-N-Cheese and Mandarin oranges for dinner. (Well that was the kids; parents haven't had dinner yet).

Of course in typical India fashion, there was no advance warning about the food shipment arriving. It pulled up just as our little meet-n-greet swim party was breaking up, which amounted to a great deal of chaos. But, it was such a nice ending to what started out as a crummy day! First the company of E and C - comparing food shops, which ones have wormless broccoli and which ones have decent cheese, let alone meat; and of course comparing funny (and not so funny) little incidents. And then the food truck arrived! Maybe life will settle into more a normal groove now that we can have the occasional Mexican dish. :smile:

During our little chat there were about 10 kids swimming in the pool. It was wonderful to see them having such a great time. This house was built for entertaining; it feels so natural to do so here.

The crummy part was that I woke up in pain at the cancer site again. Really, it takes so long to heal from radiation. Jan 2nd was my last treatment, and I still have occasional days of swelling, pain, and heat. (The breast runs a fever.) The skin will never be the same, but I am resigned to that; at least the skin damage doesn't hurt any more, and it's not a publicly viewable area :wink: . They do say 6 months to a year to heal completely....so I keep hanging on to that. Truthfully, it is much better than it was. It's just a slow process.

So I was pretty grouchy when I dropped a (sobbing) J off and tried to go to L's teacher appreciation party. But we got through it and even made it to the grocery store for the tea. (This is the advantage of a good driver, ladies - he hangs on to the overstimulated 5 year old while you run in and buy some food.) The funny part is that I was so tired, and doped up for the pain, that I accidentally texted S's driver instead of S himself - something along the lines of "Rough day. Where R U?" (I wasn't sure if S was at the plant, 2 hours away, or in his city offices.) This set off a long chain reaction of messages - including a reply to me from Sudhakar saying that he was with Sir at the plant - and phone calls (I guess the driver even phoned his wife to see if I was OK. :o: ) They both had a good laugh about it on their way home.

Ah well. At least I can provide some comic relief. :smile:

On a More Personal Level

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I am tired. Very, very tired. The heat is draining me and there is lots to do to get the house ready to move into. The maid starts Monday and I'm not even sure how to handle that yet. We need to get down on our hands and knees and scrub the place clean, but I also have to be in town at noon to pick the washer up. Maybe I will send one of the drivers to do that. Plus, I need to communicate to her that I will help once, for the initial cleaning, and then it's her job. She doesn't speak much English so that ought to be a trick. :rolleyes:

S is in Russia and therefore we can expect meltdowns from L. I finally realized that he is confused and experiencing stress because the drivers do a great deal of the things that daddy used to do - play with him, drive him everywhere, carry the packages, etc. Meanwhile, daddy is gone a lot with his new job, often until late at night. Therefore L was afraid that daddy was leaving him. We had a few good talks about it; I hope it helps. We shall see. I may spend the entire next week putting him into a headlock to convince him that he is safe. I hope not.

The dirt here (in India) is getting to me badly - I moved aside the curtains tonight to look under them for some puzzle peices, and realized that the entire wall under the window is badly water damaged and molding. Yuck. Gross. The sheers were disgusting too. Here we are in this huge marble suite, in a 5-star hotel, and the walls that are hidden by the disgustingly dirty sheers look like something that I wouldn't even tolerate in my basement. :yuck:

So I put our air purifier on (hesitantly - it's the first time I've used the big transformer, and I'm not sure that the hotel has a whole-house stabilizer), and told myself that I could tolerate it for another week. After all, we've been here 3 and no one has died yet. But, I ache to get my hands on my own house and basically bleach the heck out of it (although the bleach here does not smell like bleach - which worries me). There is always lysol though. Whatever, I need to clean to feel more in control. So that's on my agenda tomorrow, since the workers are finally finished on the inside, and therefore I can have control over who enters the inside of the house.

If, that is, J isn't really sick. She had a tummy ache and low fever tonight - both are better now. She keeps forgetting not to rinse her toothbrush under the tap. sigh. I need to make some signs, I guess.

So that's my life. Wish I was physically healthier. I still ache and the skin itches where I had cancer, and I still need a ton more sleep. S keeps asking when I am going to feel better, and I wish I knew. Someday, God willing.

Abort! Abort! Abort!

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I'm really liking my cheesy NASA take-off theme. :D

No, we're not aborting the move. But it does look like the house deal is in the tank. Without going into too many details - and risking slander charges, ha ha - let's just say that I'd give it a 50/50 chance of going through.

Which, today, seems like it may not be such a bad thing, despite the wasted money, energy, and time spent looking for houses in February. If we get there with no house, then we'll look again. As of today, several nice, big apartments in complexes with pools have come on the market. There are also a couple of big new homes out where we were looking. None of ads mention running water or electricity, but hey, we'll deal with that when we look at them.

Yesterday, though, was my day for a supernova meltdown. I overdid it on Wednesday sorting the garage, and was tired and very sore (you'd be amazed how many muscles there are connected to your breast. :smile: So I was grouchy. And when the e-mail came in about the house "issues", I had a "discussion" with my husband and we moved the pack date back a week. It may not even affect when our container gets to Chennai, but it gives me the luxury of having the time and energy to sort all the interior of the house. That way, we won't get there with the ice skates and kitchen trash packed in our shipment. :yes:

After about 14 hours of sleep I feel better.

So as of today, we leave IL around the 10th. The packers come the 5th. And L has the 5th, 8th, and 9th off of school. Hmmmmmm.....how much you wanna bet he gets packed too? :yikes:

For another look at how househunting in Chennai works, check out this blog.
http://www.scottcarneyonline.com/blog/2007/02/abandon-all-hope-ye-who-enter-chennai.html

I especially like the parallel with Dante's inferno that the author draws. :devil:

Stay tuned,

T

We now pause for station identification....

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And the station is called DCSI (ductal carinoma in situ). Yep, unbelievably, it seems that I have breast cancer. :cry: However, before panic gets ahold of me just writing it, it is stage 0 (that's right, there's a stage 0!) cancer - non-invasive. It is contained within the milk ducts in my breast. In fact, there is only a 70% chance that it will ever get out of the milk ducts, let alone spread to some vital organ and kill me. But, the risk is unacceptable to me and so we are going to slow down on our plans to move abroad, and treat the cancer.

So....the house is not going on the market on Saturday. We are (probably) not going to go on a house-hunting trip in September. We are very blessed that the company is not pressuring us to get to India within the next few months - in fact, since S's replacement for his job here is not free until January 1, it's even a wee bit beneficial for them that our move is delayed. And since the job in India is new, there is no family there waiting to come home when we arrive. A lot of blessings.

And, now we get to do the holiday circuit in the US - including J's birthday, S's birthday, our anniversary, Halloween, Thanksgiving, and maybe even Christmas! :smile:

Treatment for me probably includes a lumpectomy (my third, but first cancerous); and then radiation. Lumpectomies don't scare me, but I do hate recovery and all that tiredness. Thank goodness the kids start school next week. Whew! And I have already contacted a maid service to clean the house weekly. My perk for being sick. :queen:

There is usually no chemo and probably no lymph node biopsy with this cancer type, but we are talking to the oncologist on Monday, so all that might change.

In the meantime, I appreciate all of your prayers. I apologize to family members and friends who have not heard about this yet. I can't bear to talk about it all day, so have not yet called everyone that I should. And no, mom and dad can't read the blog, so they won't find out this way (and don't know yet, I have to get some energy up to call them. The biopsy was draining.)

Hopefully I will be able to go to the MIND and the Portland trip in October. As things progress (after the surgery and final pathology report), we will know more.

While this was so overwhelming at first, I am reminded of the 5 travel dates we had to get L. No other adoptive couple I've ever met has had that many cancellations of their travel plans. Remember the 4th travel date, when the visas didn't come through, because of local heavy fog? That was the last straw. There wasn't even any fog here; I drove 45 minutes to the airport where we had them flown to, and you could hardly see the terminal when I got there. We missed our flight out of the country AGAIN. I thought I would lose my mind.

But that experience strengthens me now. There were lots of blessings at the time that I could not see. For instance, since FedEx couldn't deliver them on time as promised, they waived the hundreds of dollars that it costs to get something hand-carried and put on an airplane. But biggest of all, when we arrived and found out that we definitely would not be adopting Ainur (the little girl), I was able to meet her new parents, and pass on her medical information that we had evaluated here in the US. I could not have left that suffering, wailing little girl (in horrible leg braces that made her scream in pain), that I had counted on being my daughter, in that orphanage, unless I knew that she was getting OUT and getting the medical care that she so desperately needed. And I never, ever would have found out if she got adopted - there was no way. But, since we were delayed so many times, we were there to meet her new parents. That eased my mind and I could let go of her, because I knew that she had a home with people who cared.

I'm sure that there are similiar blessings in this situation; I just can't see them right now. But I trust that they are there.

I don't know how much I'll be posting, as really I don't think that the gory details of cancer treatment are what the average person wants to know; but there is a fantastic and very uplifting blog about cancer at http://onkristasmind.blogspot.com/. She is a gifted writer and has a wonderful outlook; I've been a member of her support group for infertility for years now. Please check it out if you wish.

Thanks,

T