DO NOT PASS BY
Wednesday, 13. August 2008, 09:24:23
DO NOT PASS BY
(Or how and which way to help a person with the critical disease)
Herewith mentioned below, please find some of the extracts from my correspondence with my friend Maria Sch from Sicily – Italy.
To all those who are not ignorant of the fate of Maria, here is her internet address:
http://my.opera.com/MariaSch/about
Some time ago I read the following notice in Opera Community:
Introduction:
Monday, 14. July 2008, 17:40:15
What can I say about me if I do not recall who I am. Illness has erase memory so I guess we will have to discover it togeter. I live on a day to day basis as each day is a new life for me. Little is rememmember from yesterday so I rely on my husband who kindly write for me and or correct my writing.
If someone or something makes a strong impact on me, it will be recorded easier otherwise i rely on a notepad (uch i know).
I am both physically and mentally challenged yet it doesn't stop me from trying to make the best of each day.
If you are still interested in knowing me, you are welcome to jump in otherwise i thank you for stopping by and wish you a safe travel.
Would you like to become friend?
From: MariaSch
Date: 2008-07-14 12:19
I am new to My Opera and would like to become friend.
Big thank you for the poem " MOTHER " i read it often
and still make me cry. Wonderful work
thank you for sharing.
Maria
I replied and we began corresponding:
High, dear Maria.
It's me - Valentin Savin - your new friend from Russia.
I wish you everything you want and let your dreams come true.
By valsavin, # 19. July 2008, 07:58:33
Herewith are some of the latest rather saturated correspondence with Maria:
may i ask your help to translate this please? thanks hugs
From: MariaSch
Date: 2008-08-10 08:45
Translate this please.
1
Whoever you are, do not leave, please.
Whatever are my fault, they are equal to any given girl my age, you can pass over. It is said that i’m not Miss
simpathy 2008, not to be voluble or even always cheerful; I am timid and prefer to listen instead of talking, appreciae my few
qualities!
2
Whoever you are, do not go away, please.
Spend some time with me, stop by, talk to me, offer me a smile, a tear, hug me tight. I know time is precious and maybe your is mre than anyone else but give me some, just a little. I NEED it! And when it will be you to ask it from me, be certain i will return it with pleasure.
3
Whoever you are, please, dont go.
So many have done it. For a moment, an hour, a week, a month, un eternity. They come by, make a pause long enough to understand that….. and they go their way. You are free to go, but please, return. And dont go away this very minute.
4
Whoever you are, please, dont go.
You can agree with who says that i feel this way because i am depressed. You might be right, well, you are right if when you demonstrate me tht i am only a human being in this world that can superate some grief and cause of sadness without the help and the comfort of a friend.
5
Whoever you are, please, dont go.
Don’t do it, not today, not now. Come to me. Hold my hand. Hold me tight between your arms. Smile to me, look at me in the eyes. Sit down beside me for each of us can see the horizon and it is what i expert holding your hand.
6
Whoever you are, please, dont go.
If you still did not get the point, it is a request of help. Do not be deaf even to my words. Stay with me, my friend.
Stay with me my friend. Stay with me, whoever you are.
author silvia
Re: may i ask your help to translate this please? thanks hugs
From: MariaSch
Date: 2008-08-11 16:24
I cant express my gratitude for your help Valentin. I have a last
favor to ask you. This is my own letter that will be published in
a medical journal. I would like you if possible to translate it into
russian if it is not to much asking and hard work. thank you for all.
with all my love and gratitude, your friend Maria
p.s. my greetings to your wife Kira.
p.s. do NOT feel obligated to do it, only if you feel like doing it
and if you do it, i'd like your permission to give your name as the
translator. thank you
here is the letter with numbers.
1
-Letter from CHRONIC PAIN SUFFERERS to family members and friends.
2
-A Letter from a Person with Chronic Pain
3
-Having chronic pain means many things. Most people do not understand about chronic pain and its effects.
4
-I spend most of my day in considerable pain and exhaustion, and if you visit, sometimes I probably don't seem like much fun to be with, but I'm still me, stuck inside this body. I still worry about work, my family, my friends, and most of the time I'd still like to hear you talk about yours, too.
I work hard at not being miserable. If you're talking to me and I sound happy, it means I'm happy. It doesn't mean that I'm not in a lot of pain, or extremely tired, or getting better. I am merely coping. I am sounding happy and trying to look normal.
5
-Please understand that being able to stand up for ten minutes doesn't necessarily mean that I can stand up for twenty minutes, or an hour. If I managed to stand up for thirty minutes yesterday that doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one, it gets more co nfusing every day. It can be like a yo-yo. I never know from day to day, how I am going to feel when I wake up. In most cases, I never know from minute to minute. That is one of the hardest and most frustrating components of chronic pain. Sitting, walking, thinking, concentrating, being sociable and so on, it applies to everything. That's what chronic pain does to you.
6
-Chronic pain is variable. It's quite possible (for many, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the next room. In a similar vein, I m ay need to cancel a previous commitment at the last minute. If this happens, please do not take it personally.
7
-Sometimes getting out and doing things does not make me feel better, and can often make me worse. I am working with my doctors and I am doing what I am supposed to do. Obviously, chronic pain can deal with the whole body, or be localized to specific areas. Sometimes participating in a single activity for a short or a long period of time can cause more damage and physical pain than you could ever imagine. Not to mention the recovery time which, in itself, can be lengthy and intense. You can't always read it on my face or in my body language. Also, chronic pain may cause depression but it is not created by depression.
8
-Please understand that if I say I have to sit down, lie down, stay in bed, or take these pills now, that probably mea ns that I do have to do it right now, it can't be put off or forgotten because I'm somewhere, or I'm right in the middle of doing something. Chronic pain does not forgive, nor does it wait for anyone.
9
-If I seem touchy, it's probably because I am. It's not how I try to be. As a matter of fact, I try very hard to be normal. I hope you will try to understand. Chronic pain is hard for you to understand unless you have had it. It wreaks havoc on the body and the mind. It is exhausting and exasperating. Almost all of the time, I know that I am doing my best to cope with this, and live my life to the best of my ability. I ask you to bear with me, and accept me as I am. I know that you cannot literally understand my situation unless you have been in my shoes, but as much as is possible, I am asking you to try to understand in general.
10
-In many ways I depend on people who are not sick. I need you to visit me when I am too sick to go out. Sometimes I need you to help me with the shopping, the cooking or the cleaning. I may need you to take me to the doctor, or to the store. You are my link to the "normalcy" of life. You can help me to keep in touch with the parts of life that I miss and fully intend to undertake again, just as soon as I am able.
11
-I know that I ask a lot from you and I do thank you for listening. It really does mean a lot.
12
-Share this with all of those around people that live in chronic pain or illnessses that makes them suffer in a daily basis.
13
-Thank you! Maria Sch.
Such is the sad story of the fate of one concrete person.
In my turn, I shall be very happy and thankful to those people who respond to the appeal of Maria and somehow try to alleviate her sufferings.
Sincerely yours,
Valentin Savin
(Or how and which way to help a person with the critical disease)
Herewith mentioned below, please find some of the extracts from my correspondence with my friend Maria Sch from Sicily – Italy.
To all those who are not ignorant of the fate of Maria, here is her internet address:
http://my.opera.com/MariaSch/about
Some time ago I read the following notice in Opera Community:
Introduction:
Monday, 14. July 2008, 17:40:15
What can I say about me if I do not recall who I am. Illness has erase memory so I guess we will have to discover it togeter. I live on a day to day basis as each day is a new life for me. Little is rememmember from yesterday so I rely on my husband who kindly write for me and or correct my writing.
If someone or something makes a strong impact on me, it will be recorded easier otherwise i rely on a notepad (uch i know).
I am both physically and mentally challenged yet it doesn't stop me from trying to make the best of each day.
If you are still interested in knowing me, you are welcome to jump in otherwise i thank you for stopping by and wish you a safe travel.
Would you like to become friend?
From: MariaSch
Date: 2008-07-14 12:19
I am new to My Opera and would like to become friend.
Big thank you for the poem " MOTHER " i read it often
and still make me cry. Wonderful work
thank you for sharing.
Maria
I replied and we began corresponding:
High, dear Maria.
It's me - Valentin Savin - your new friend from Russia.
I wish you everything you want and let your dreams come true.
By valsavin, # 19. July 2008, 07:58:33
Herewith are some of the latest rather saturated correspondence with Maria:
may i ask your help to translate this please? thanks hugs
From: MariaSch
Date: 2008-08-10 08:45
Translate this please.
1
Whoever you are, do not leave, please.
Whatever are my fault, they are equal to any given girl my age, you can pass over. It is said that i’m not Miss
simpathy 2008, not to be voluble or even always cheerful; I am timid and prefer to listen instead of talking, appreciae my few
qualities!
2
Whoever you are, do not go away, please.
Spend some time with me, stop by, talk to me, offer me a smile, a tear, hug me tight. I know time is precious and maybe your is mre than anyone else but give me some, just a little. I NEED it! And when it will be you to ask it from me, be certain i will return it with pleasure.
3
Whoever you are, please, dont go.
So many have done it. For a moment, an hour, a week, a month, un eternity. They come by, make a pause long enough to understand that….. and they go their way. You are free to go, but please, return. And dont go away this very minute.
4
Whoever you are, please, dont go.
You can agree with who says that i feel this way because i am depressed. You might be right, well, you are right if when you demonstrate me tht i am only a human being in this world that can superate some grief and cause of sadness without the help and the comfort of a friend.
5
Whoever you are, please, dont go.
Don’t do it, not today, not now. Come to me. Hold my hand. Hold me tight between your arms. Smile to me, look at me in the eyes. Sit down beside me for each of us can see the horizon and it is what i expert holding your hand.
6
Whoever you are, please, dont go.
If you still did not get the point, it is a request of help. Do not be deaf even to my words. Stay with me, my friend.
Stay with me my friend. Stay with me, whoever you are.
author silvia
Re: may i ask your help to translate this please? thanks hugs
From: MariaSch
Date: 2008-08-11 16:24
I cant express my gratitude for your help Valentin. I have a last
favor to ask you. This is my own letter that will be published in
a medical journal. I would like you if possible to translate it into
russian if it is not to much asking and hard work. thank you for all.
with all my love and gratitude, your friend Maria
p.s. my greetings to your wife Kira.
p.s. do NOT feel obligated to do it, only if you feel like doing it
and if you do it, i'd like your permission to give your name as the
translator. thank you
here is the letter with numbers.
1
-Letter from CHRONIC PAIN SUFFERERS to family members and friends.
2
-A Letter from a Person with Chronic Pain
3
-Having chronic pain means many things. Most people do not understand about chronic pain and its effects.
4
-I spend most of my day in considerable pain and exhaustion, and if you visit, sometimes I probably don't seem like much fun to be with, but I'm still me, stuck inside this body. I still worry about work, my family, my friends, and most of the time I'd still like to hear you talk about yours, too.
I work hard at not being miserable. If you're talking to me and I sound happy, it means I'm happy. It doesn't mean that I'm not in a lot of pain, or extremely tired, or getting better. I am merely coping. I am sounding happy and trying to look normal.
5
-Please understand that being able to stand up for ten minutes doesn't necessarily mean that I can stand up for twenty minutes, or an hour. If I managed to stand up for thirty minutes yesterday that doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one, it gets more co nfusing every day. It can be like a yo-yo. I never know from day to day, how I am going to feel when I wake up. In most cases, I never know from minute to minute. That is one of the hardest and most frustrating components of chronic pain. Sitting, walking, thinking, concentrating, being sociable and so on, it applies to everything. That's what chronic pain does to you.
6
-Chronic pain is variable. It's quite possible (for many, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the next room. In a similar vein, I m ay need to cancel a previous commitment at the last minute. If this happens, please do not take it personally.
7
-Sometimes getting out and doing things does not make me feel better, and can often make me worse. I am working with my doctors and I am doing what I am supposed to do. Obviously, chronic pain can deal with the whole body, or be localized to specific areas. Sometimes participating in a single activity for a short or a long period of time can cause more damage and physical pain than you could ever imagine. Not to mention the recovery time which, in itself, can be lengthy and intense. You can't always read it on my face or in my body language. Also, chronic pain may cause depression but it is not created by depression.
8
-Please understand that if I say I have to sit down, lie down, stay in bed, or take these pills now, that probably mea ns that I do have to do it right now, it can't be put off or forgotten because I'm somewhere, or I'm right in the middle of doing something. Chronic pain does not forgive, nor does it wait for anyone.
9
-If I seem touchy, it's probably because I am. It's not how I try to be. As a matter of fact, I try very hard to be normal. I hope you will try to understand. Chronic pain is hard for you to understand unless you have had it. It wreaks havoc on the body and the mind. It is exhausting and exasperating. Almost all of the time, I know that I am doing my best to cope with this, and live my life to the best of my ability. I ask you to bear with me, and accept me as I am. I know that you cannot literally understand my situation unless you have been in my shoes, but as much as is possible, I am asking you to try to understand in general.
10
-In many ways I depend on people who are not sick. I need you to visit me when I am too sick to go out. Sometimes I need you to help me with the shopping, the cooking or the cleaning. I may need you to take me to the doctor, or to the store. You are my link to the "normalcy" of life. You can help me to keep in touch with the parts of life that I miss and fully intend to undertake again, just as soon as I am able.
11
-I know that I ask a lot from you and I do thank you for listening. It really does mean a lot.
12
-Share this with all of those around people that live in chronic pain or illnessses that makes them suffer in a daily basis.
13
-Thank you! Maria Sch.
Such is the sad story of the fate of one concrete person.
In my turn, I shall be very happy and thankful to those people who respond to the appeal of Maria and somehow try to alleviate her sufferings.
Sincerely yours,
Valentin Savin
WIDGETIZE
Croitoru # 17. August 2008, 11:45
Croitoru # 17. August 2008, 11:46
valsavin # 21. August 2008, 09:41
Thanks a lot and best of luck to you.
chanmok1 # 23. April 2009, 11:45